Category: Uncategorized Page 23 of 25

I drive across the fields of gold
the tears upon my cheeks not old
to leave him in this place so strange,
such is the pain of love,

this quiet gentle smiling man
whose eyes can hardly understand,
I breathe his courage, I live his fear,
such is the pain of love

he looks at me with eyes of love
to find a power from above,
I cannot fail, I cannot falter,
such is the pain of love,

why oh why, this wretched time
should pick this dear and sweetest man
when worlds have met as ours have done
for all of this to be undone
such is the pain of love,

but still we’ll fight and fight
to push the boundaries back,
we’ll lean together to gain more strength,
to learn and listen, and to wait,

this is the pain of love…

@ Copyright 2007

Today, at 10.45 p.s.t. at Thubten Dhargye Ling approximately 100 friends will say prayers for Hamada.

We thank you all.

It was not a good day yesterday with a further visit to Lincoln Hospital, and after a terribly long wait, it was decided after consultation that the best course of action at this time, was for Hamada to return to Chemotherapy. To try to reduce the Myeloma cells and get them to a lower level to proceed to Transplant – the cocktail now includes , Cyclophosphamine,Dexamethasone, and Thalidomide and all the extras that go with that !
He also has some fractures of the vertebrae again and this causes some collapse of the spine which is so very painful . We have good drugs that cover the pain well, but he walks slowly and has lost more height. All these thing make me so sad- to see this lovely gentle kind man, suffer in this way. It is without doubt a despicable disease.

The following poem is dedicated to our very dear friends – Zena and Pieter – who live so many miles from us now – but we shared a life in the following place, mentioned in this poem. They are so constant with their calls and encouragement, that we feel they are never far away. We thank them for their strong friendship and dearly hope to have such fun, as we did in those days, when we meet once again. Thank you both and bless you for your kindness.

Thank goodness, after a most difficult week, Hamada is feeling so much better today. His back pain nearly gone. We visited the Alex Day Ward at Lincoln Hospital for the regular weekly ‘line-flushing’ the wonderful nurses do a sterling job everyday, looking after and attending to many patients. They work with so much grace and understanding for each and every person. Always a smile and a greeting. Nurses, like Linda, Michael and Claire et al. – “Big thanks” to them, and “Heaps of Rainbows” to you all.

See also comment under this. Thank you all.

So many rooms before us
all tall and elegant in their way,
he, brought me to this fine home
to spend our summer days,

And as we greeted one another
I looked from balcony views,
my husband tightly held one hand
his mother did so too.

I loved the fine Aubosson rugs
on each and every floor,
I loved the smell of cedar mixed
with mint, and life before,

and how I loved this golden life
the slowness of the days
this gentle kind enduring Mother
who showed another way.

The calmness of her movements
the joy at everyday,
would take me on a journey
to discover peaceful ways.

@ Copyright 2007.

Found on a friends Web – Jewel (USA). I like this very much.

No matter what is going on
never give up

Develop the heart
too much energy in your country
is spent developing the mind
instead of the heart

Be compassionate
not just to your friends
but to everyone
be compassionate

Work for peace
in your heart and in the world
work for peace

Never give up
no matter what is going on
around you
never give up.

By H H XIV The Dalai Lama.

We now have the pain under control again and have this morning talked with the support team at Lincoln Hospital. The good advice from the Haematology Nurse has been most helpful and Hamada feels much more comfortable now. This severe pain is to be expected at this stage of the Myeloma, but we must endeavour not to let the pain “take hold”. I am now playing some of his favourite music, his smile is back, and it’s a much better start to the day.

Hamada is not so good today – the pain in his back is really bad – he is taking Oramorph – and today unable to get out of bed unaided. I feel so sorry that this is so, especially after doing so well with the ‘Harvesting’ last week. Perhaps all the sitting around and the long car journey has taken it’s toll. He will be resting and sleeping most of this – Father’s Day – I will shower him with as much love as I can. The two poems above are special to us, but today is a good day for them. Thank you all for your good wishes, it is a comfort to know you are all thinking of us.