A Power Within

Category: Carers Support Page 1 of 2

Watching Clouds.

Watching Clouds…

I’m watching clouds today.
You know, when the sky is the colour of cornflowers and the wind is high in a sky as large as an ocean,
these white fluffy cottonwool shapes scud past as
I lie on my soft snugly bed, the sky clear and lemony sunny,
I’m watching clouds today.

My balcony door is wide open, the breeze is sharp and Winter fresh, my nose is going pink
but under my warmest blanket with hot water bottle in place I am as warm as if being on a Caribbean beach.

I’m seeing the world today.

One soft white air-balloon sped by, I am sure people were waving,
followed by a perfect Isle of Wight
then came a magical galleon ship, well maybe not quite a galleon ship but huge sails full of powerful gusts puffed out in front, full I’m sure of gold and pearls.
Then a strangely big leg of Italy very close, kicking away from the rest of its land.
I’m watching clouds today.

An odd tree came next, most shapely I thought, blown sideways but I turned my head just in time.Then came a large alligator not of white clouds but formed from the gaps between but you never have cornflower blue alligators do you?
Imagination is a wonderful thing.

I’m watching clouds today.

Susie Hemingway 2021

Watching Clouds.

The Wall – Susie Hemingway.

image

The sunlight crept over the wall slowly
pulling itself as if tugging a tank
the heavy night seemed distant
the dreams seemed real…
With heavy heart I looked at the sky
the soft blue of a summer day
was nearly upon me,
light puffy wisps of pearly white clouds
pushed into my vision,
as this voice inside vibrates,
a heart bleeds and dissolves.

This circle goes round forever
this wall withers my needs
as I look above…
Difficult heart cutting days.
The wall that holds me back.
The wall, tall, dark and brutally gloomy,
this barrier to a new life,
this wall so near my face,
this wall that snaps and breaks me
and withers my heart…

This wall so heavily built against me
unyielding,
this block of bricks
returns its view…

@ copyright Susie Hemingway.

 

 

It’s A Passage – Not A Place To Stay!

Good sensible words – a little mantra perhaps (“it is the price of love”) for those struggling to go forward.  Thoughts of my  friends during this festive month, to all those who read here and who find it even harder at this time of the year. I’m sending a positive prayer to let you know that I am thinking of you, my very best wishes that you continue well, and hope too that you find much needed solace.

“Simple Words For Loss”

 

Having recently been reading the blogs of several of my widowed friends who lost their husbands about the time of the loss of my dear Hamada and their continued surprise that after three years or more, they are still feeling so much pain.  My heart goes out to them daily and I understand their dismay at not being able to ‘move on’. Grief is so different from person to person, just as days are different for us all.  Days that are filled with fun and busyness  with not much time for reflection are good when you are grieving but they do not happen everyday and are so much more preferable to the days of quiet thoughtfulness. Why do we need I ask, to concern ourselves so much with ‘moving on?’   Yes, we have a duty to show a good cheerful face to the world and to our families and friends. For who wants to spend time with a sad-sack who is constantly looking backwards, casts a shadow on every occasion and not really much fun to be with?

We must try at least to continue well and be supportive friends and a nice person without sadness to be with. But privately you cannot always ‘swallow your grief ‘ and why should you? It is so intrinsically bound up with who you are now and how you feel deep inside. It would be fool-hardy to deny these feelings when they emerge and engulf us.

These feelings of loss help me to continue well in my daily life and I must have these moments of deep quiet reflection and I use this time to pull the good memories and sometimes the not so good, out to ‘lay in front of me’ for a time, to clear my head and my heart of the loss I still feel.

I love to read books and sonnets of powerful overwhelming love that  has been lost. We are not the first or will we be the last to feel acute pain. I use favourite books  and quotes that bring comfort to me, that if I am completely honest make me understand the pain I often feel even three years further on. I miss my special man – will that ever change I doubt it and nothing will bring him back to me. But I refuse on occasions not  to acknowledge the deep pain of missing him on those quiet reflective days I talk about.

Occasionally I post quotes that mean a lot to me. Words that I would have loved to have written myself, words I believe, that sum up the way many of us who have lost our special person are feeling now. Words that many of you who read here, will understand well. I would like if I may to share them with you:

Grief is different, Grief has no distance. Grief comes in waves, paroxysms, sudden apprehension that weakens the knees and blinds the eyes and obliterate the dailiness  of life. – Joan Didion – The Year of Magical Thinking.

A single person is missing you and the whole world is empty – Philippe Aries – Western Attitudes Towards Death

To mourn is to be eaten alive with homesickness for the person – Olive Ann Burns, Cold sassy tree.

My wind is turned to bitter north that was so soft a south before… Arthur Hugh Clough – A Song of Autumn

People imagine that missing a loved one is kind of like missing cigarettes. The first day is really hard but the next day is less hard and so forth, easier and easier the longer you go on. But instead it’s like missing water. Every day you notice the person’s absence more - Anne Tyler, Back to when we were grown-ups.

A bird sings, but they have no song that I can hear – Beryl Markham – West with the Night.

Yes words of sadness they certainly are, but I believe helpful in the understanding of the grieving process that so many of us have difficulty in absorbing, often desire to wish away, and to think we should not be feeling now. But I believe profoundly that we have a private right to grieve, and should not wish this pain away – embrace it, for your heart will never heal if you deny it the time to do so.

Continue to feel your loss my friends without apologies and yes succumb to it on occasions – it is after all our biggest connection to those we loved and must never be under-estimated in the healing process.

Blessings and Peace my friends.

 

It is a Letter of Utter Love:

Photo: Across To Granada from Susie's Collection:

Scroll down in the comments to read the moving letter from Karen on http://susietest.stff.me/2013/05/07/the-fight-without-choice/

In Reply – A Letter Between Two Woman.

Dear Susan,
Firstly sincere apologies for not replying sooner. I have been busy having a birthday, so went South to visit my family staying over with my youngest son and spending a joyous time with a friend. All was wonderful and I was spoilt at all quarters. I am indeed a lucky lady!
Now the weather here in the Village is as dismal as can be, with much rain and the chilly winds blowing the orange and golden leaves into messy piles with puddles forming along the lanes.The trees taking on the look of black scarecrows waving their long arms. The afternoons are early dark so the evenings and nights appear longer. I am already longing for the Spring…
I read your letter and could feel your pain leaping from the page. Days now for you are the hardest and for all those in early grieving not easy. For folk who have never lost a loved one it is hard for them to imagine the engulfing all consuming pain, that threatens at times to overwhelm. The confusion you feel right now I can remember so well. The waking and the terrible feeling of loss that floods your consciousness is hard to bear but we do bear it you know. As time goes by, we can for part of the day desire to remember so fondly, these special loves of ours. And so as the months pass by it will get better and not be so painful – I promise you this. Going backwards and forward in the path of grief, is how to me, this painful emotion unfolds, to become something we can manage.
Tomorrow will be two years for me since Hamada’s death – how can that be? I miss him so naturally the same way that I take a breath each day, he is so much a part of me. It is the time of your thanksgiving celebrations – I shall be thankful for having known this oh! so special man and for the joy he brought into my life, thankful for the gentleness of him, of him loving me and our wonderful time together. I know you will find this holiday very painful and will spend most of the time looking back, thinking of your beloved Dan. Try if you can to think joyously, bringing lightness into your heart, it is difficult I know and somewhat flippant for me to say but I know this can help to think of all he brought into your life during your years together.All that was yours and his alone – precious and unique and perhaps known only to you two. Preserve these memories and hold them close. This day of Thanksgiving will pass like all the others… Embrace your family and your memories of Dan.
I understand well the different feelings of your girls. I faced this too with my boys – they knew well my pain of course, they only had to look at their Mother to see the light had gone out from her eyes. But they were hurting too. My Grandson was in terrible pain – something that worried me so very much but with the help of his good Mother and Father and continued counselling he is doing very well now. As my sister said the other day ” we all miss him so” It is not just us that are raw with pain in the early days. Discussion of my emotions was hard with my sons, for when I saw them they so wanted to cheer me up, not recall my pain. They listened of course but I think they feared of upsetting me all over again. I leaned against them but my youngest son ‘swallowed his pain’ and still does I feel. Your girls will act differently from each other, will be different emotionally but they will adjust to their loss in their own way, for time does take care of that.
Life will never be the same for any of us that have experience such amazing people in our lives and then watch them suffer in the way they did and for so long enduring it all and their absolute bravery. Your beautiful caring daughters watched this over the years too, as my sons saw the terrible changes in dear Hamada and they watched my knowing loss and final acceptance. I salute our precious people, for they deserve much admiration in their forbearance too
I feel I cannot wish you a “Happy Thanksgiving” but you know dear one – we do have much to be thankful for – the love we both knew and experienced with these two wonderful men. The strength we had to learn but would rather have not, the insight into something profound and spiritual – it was a lot and I am thankful now that there is peace.
Blessings and Peace to you dear friend.
Susie x

Letter Between Two Woman Cont.

Dear Friend Susie,
It has taken a while to get back to you though your words resonated and brought me such comfort.  I am so grateful for your honesty and your ability to reach across the miles and speak so eloquently to what remains after the death of such a precious loved one.  I am often floating in a state of utter confusion. I wake from a nap or the middle of the night and I look for Daniel and realize he is never coming back.  He really died!  The mind does play tricks with me. I have taken such a body blow.  The worst fear of my life, losing my husband, has happened and I am still here.  Sorting through such myriad emotions I am either wading through waist deep wet sand or free falling from the atmosphere.I know you are farther along on the grief continuum.  I  also know now that what has happened will never will leave my consciousness until I draw my last breath.  When you asked if I would want to forget his death, I knew my answer would be ” Never!” It was a sacred moment. Such a cruel and horrifying disease.  He melted away.  As his body imploded his spirit grew.  I believe he became a wise and holy man in his suffering.  He
taught me much about grace and dignity, acceptance and gratitude.Now the new normal takes over and the day to day occupies but I never really feel whole.  I am busy redoing the house, trying to lighten, brighten, and renew what has felt so static.  I am amused by my little tasks in light of all l that has happened. Sometimes I long for  time to pass more quickly so I could back and say I did the hard work of grieving and now I can create something that resonates for me.  I would be lying if I said this has not affected my relationships with the girls.  One wants me to show no emotion and is easily annoyed with me.  I am the one here, her beloved father is gone.  I realized I would have to take the hits, I am the “grown up” but oh I am tired of it.  My other daughter, who lives in NYC, closes down and is often “unavailable”.  So much for my dream of us all coming together in this new family unit.  I will be patient but this can sometimes break ones spirit.  I am always surprised by my naive view of what will be.  The family will become stronger without the main man because we were all in this together.  I think it must be broken first and then we will come back stronger in the broken places.I am taking the girls to Mexico for Christmas with my darling brother.  Then I decided to get away and will spend 2 weeks in Paris in January.  Sometimes running is the only course for a time.  You may post anything you wish, I really have no problem with sharing this difficult and beautiful time.  Your sister in spirit, susan

“An Open Letter” Cont.

Update on an “Open Letter Between Two Woman” Scroll down to see the beginning beneath the poem  “All Is Love” if not already following.

Dear Susie,
It is a beautiful fall day. The sky is bright blue and filled with gorgeous puffs of white.  A true Colorado day with everyone outside on their bikes, running the trails, playing ball in the parks and enjoying the blessings of a perfect Indian summer.  I find myself at loose ends.  I met a friend for brunch and came home and felt lost.  I have cried very little, made myself available to see the lovely people in my life, and tried to center my thoughts on gratitude rather than sadness.  And then a deafening silence fills the house and I realize what I have lost.  I find I can tell you these things better than others.  I am busy acting “as if”, needing to reassure everyone that I am doing well. I tell my friends that I am whole despite this tragedy. And yet I know  that I have such a long climb ahead of me. Dan’s best friend, Ted, has faithfully read your blog since Dan was diagnosed. That was how I found you.  Today he wrote to me and said he wished he had the words you have expressed so beautifully over the years to clear out out the sadness and despair he feels.  Once I read his words I knew I had to ask you if your life feels a bit more whole now. I know you have been doing the hard work of grieving and living and wonder whether you still feel that inability to fully breathe.  It has only been five weeks but the rest of my life seems very long.  I am blessed with friends and family and a home I can afford and endless possibilities (I hope) and then the magnitude of what has happened blindsides me.  On my better days I can acknowledge death as the natural outcome of life, we are not to be spared.  I tell myself my western attitudes  of death are in need of a new interpretation.  I am reading as much as I can about grief  and yet find little solace.

I have spent seven and a half years being caregiver.  Now I must redefine my whole life. And there is the question that nags at my consciousness every day.  Where is Dan?  He was Buddhist,  I was raised Catholic and feel in transit.  I am unable to find solace in the church. I am trying to be kind to myself as I count the days but I keep replaying Dan’s last breaths in my mind’s eye and wonder if that picture will be with me always.  I  do not want to forget a moment but can one move forward and remember the past so vividly?  Time heals all wounds my mother used to tell me.  Does it?  I am really writing this letter to myself I think.  I went to the Cancer Center on Friday to bring in the bags of drugs that had accumulated over the years.  I wanted to dispose of them properly.  I found it profoundly sad to enter a place we visited 3 or 4 times a week for years and know that it was really. We had run out of the possibility of a miracle.  The nurses cried, I cried, the schedulers cried, I cried, and I left wondering if one could use up all the tears of a lifetime.

Susie, if you saw my life, even in my private moments, you would be saying Bravo, you are handling this so well.  I do believe I am doing better than I expected.  But life is so messy and our emotions can often hijack us when we least expect it.  So I hope you will accept this wandering missive as it is meant, to talk to someone whose life has mirrored mine in many ways.  I know we both we blessed with exceptional life partners.  I want  to honor that and I want to find the courage to continue and dare I say, thrive.

I still see you in your garden, mowing the lawn, enjoying the moment and I thank you for such a positive image.  It gives me hope and makes me smile.  I hope you are well and I send you my best regards. Yours Susan

 

Dear Susan (16th October)

 

Having just returned from a rather nice late holiday in Southern Spain with my son and friends I am drawn to your email first.  My best PC is away having some repairs  and so I am ‘limping’ here on an ancient model but wanted to let you know that I am thinking of you and have read with much interest your words written so eloquently. From your description of a bright beautiful fall day there in your home town of Colorado to here much the same. The gardens blown to pieces with the sudden gushes that have brought the red leaves of my Virginia Creeper down and scattered them like sad drops of crimson along the gravel drive and across the lawns of my little home here in the farmlands of the Lincolnshire Wolds. The gardens are untidy and need attention but will soon be bare as the weather in this part of England dictates. I am not a lover of the cold winds and enjoyed so much the warm weather of the past ten days. Winter is long here, the nights darken early and our winters often bring snow. Not the best time of the year for me as I approach two years without my best love…

 

How alike we seem when I carefully read you words that mirror so much of my early days of grieving and loss, the meeting with a friend for lunch and then the overwhelming sense of sadness on return. Profoundly engulfing with that terrible feeling of loss and aloneness I know it so well!  Does it ever change? I have always promised to be completely truthful when writing my blog and will continue here as I know you would expect this of me. Sadness and loss have a habit of sneaking-up on you just when you expect them least. Sometimes joyous occasions can even be worse, the desire to turn around and share it with your best love and to find them missing. Oh that terrible feeling!

 

Often on holiday I thought how much Hamada would have enjoyed the warm sun of the Mediterranean on his back, the leisurely strolls and him loving this part of the world as he did. These feelings would I believe be impossible to lose. They will stay forever with us but we will learn in time to live alongside them. The days pass, almost two years for me and the pain is less raw now but I can’t say I don’t ever have wishful,thoughtful,needy days because I do. I cannot wish to forget or close my mind to these feelings of loss – I allow them to enter and fill my mind in quiet times. And then to put them aside in this special place in my heart and just get on with life once more.
Mourn now Susan not just for the loss of your precious man, but also for what will never be and then gently let it go…
Make small beginnings towards reshaping your life without the one you loved – easy huh? The books tell us that is what we need to do – but for all of us it is so different – love is different – is it not? I can talk of my love here but never to a counsellor. How would she know how I felt? Did she ever have a love like mine? I know I would be cross and angry, so it would be a futile task and of no help what-so-ever for me. Others may be different, other mourners might glean some comfort from that kind of therapy. For all of us we must take the path that feels the most comfortable in our daily lives and towards anything that will bring a fruitful tomorrow – tiny steps, tiny efforts, no more is needed at this time it is such early days for you dear one.
As to whether you will ever lose the picture of Dan’s last moments from your mind, I cannot say, but do you really want to? They are yours forever – your heart will soon learn to absorb this pain and you will accept this vision as part of Dan’s time with you here on earth, as he is now in heaven-yes I was brought up Catholic too! Think of him there, why not, free from all worldly pain, smiling and happy – that’s how I choose to think of my Hamada, resting quietly and always with his beautiful smile. Many would say that’s silly but it suits me well to believe this. As you know he is buried here in the village – a Muslim in a Christian Churchyard but that was his wish and I feel near to him here. Perhaps he thought in his wisdom that would be the case. He was so perfectly clever.

 

I still cry privately maybe not with tears but in my heart. An overwhelming sadness that arrives for no reason. It is no longer for others to see, but I am sure my closest friends and I know my family are aware of the sadness I still feel and probably always will. Back to that term I use often, that learning to live alongside this loss is what we have to achieve. 
Always celebrate your loved one, even just in your mind and with your own memories, this celebration will keep him with you and part of you. For he lives within you and you are made of all the joy he brought to your life. This significant and enormous loss does change you (how could it not?) But you can choose whether the change is for the better or not. I am far more compassionate now than as a young woman. I don’t doubt my capacity to recover or yours but I believe that to live my life now to the best of my ability and at it’s most fullness is not a betrayal of his memory, remember your loved one would want the very best for you.
It is such early days for you Susan and your email reads of one doing so very well but please don’t expect too much. You will have many days of odd emotions. To and fro, back and forth with such powerful emotions of need. Of course in the first few days there is a certain relief when finally the suffering is over and your best love is at rest. Then a period of adjustment to being and living alone – not easy. Sometimes a feeling of anger of being left alone, Hamada was younger than me – I did not envisage being alone in my old age but this feeling of anger is short lived. I am by nature a very social person but now enjoy my quiet thoughtful times. I make little plans for my days – with silly small things – I often talk to myself or sing away  I have a deep love of music which comforts me. I shall soon be that mad old lady who lives at “Hemingway” If I’m not already!!! It may seem as if you’ll never feel truly happy again but your new joy when found, will have a richness, depth and understanding that will have come from knowing profound pain and eventually profound healing. 
Expect to go back and forth with your emotions during these first months or so – I still choose to have my sad days – why not – I miss him so… It is our right to grieve and cry out for the good men we lost. But days do get better and you will thrive well, of that I know. Perhaps dare I say, you will go on dates one day again? Perhaps find a companion to travel with – you are still young and why not, but always keep your independence for I do believe this is vitally important. Good men are good listeners too!  Life has a habit of going on and we cannot choose to go back, as much as we would wish to do so, nor can we step off and stay with only our memories to sustain us. Believe in your own strengths after all you cared well for someone for all that time without hesitation or weakness – we can do this in loving memory – I know Hamada would be proud of me and I know Dan is of you too. I try to live in the present now, small simple things give me joy – I am sixty five next month but still feel there is more left in life for me. I seemed to drink in the visions of beauty on this recent holiday – noticing things in vivid colours and more detail than for a long time.
Sorry if I have rambled some – it has been a busy morning with interruptions one way and another and this old computer knows I am busy and is giving me a hard time! Still I pray my humble words will help you in some way. Written and sent with love.  Blessings dear lady.
Susie x 

 

 

All Is Love by Susie Hemingway.

For Those Who Need  A Love Poem Today

Love is a perfect note;
love is a certain smile or a gentle touch.
It is the dripping  juiciness of ripe mangos on a parched tongue
or the smoothness of rippling silk as it touches your skin
or perhaps the sweetest strawberry dipped in liquid chocolate?
 
Love could be the aroma of double espresso just before it reaches your lips,
 or is it the smoky woody smell of a newly lit fire?
 All is love.
 
 
But… Love is also the stormy greys of long worried nights
 love is restless broken sleep that drains energy from your soul,
 love is eyes heavy from sadness.
 But love is also the ashen face that looks at you when days are bad and you are brave.
 Love is you starting the fight once more as realisation arrives in your eyes.
 Love is also the beautiful eyes of family members whose tender glances record their own story.
 Love is the strong arms that support and guide your way.
 Love is the dearest child who stokes your hair with such beautiful gentle hands.
 Love is our private moments that make difficult days better,
 love is that look across the room that says it all.
 
Love is all these things…
And all these things are love, and you.

Sometimes All It Takes.

December 2009 011

This week I received two very lovely comments regarding my poems, both in the same vein informing me how much folk enjoy them and how they helped them when grieving or in pain. Yes of course I receive daily comments, it would be unusual if you wrote a blog and never heard from anyone but sometimes the wording of these comments propel you forward to keep trying to perfect the one perfect verse. I am supremely pleased when anyone leaves a comment, just to imagine someone  taking time from their busy schedule to bother to email me saying how much they enjoyed my words, a phrase, or a particular poem delights me. Sometimes they may refer to my words having helped or brought healing tears at a point in the lives when sadness was choking or blocking their emotions. That upon reading the simple phrases written here, they say it was enough to know someone understood their own pain and could perhaps share it with them. Being sad or worried is a lonely road and often one you cannot continually share with your personal friends or family. Grief affects us all at some time in our lives and to different degrees  but I yearn to understand how some of us survive while others do not.

Unless you have been or are a Carer, it is often difficult to understand the daily stress of following harsh schedules and the responsibilities for another person’s life. So often this comes upon you suddenly and it is difficult to absorb all that appears before you. If you have no nursing experience you are confronted with serious decisions to help your partner to make regarding the right path to take with medical matters plus the emotional side too; often with no outlet for your own feelings, which hover near the surface daily. My choice was to write down my daily feelings and in my simple words I found a voice that started privately but ended up world-wide! I will try to continue with my ‘poems of love’ after reading these two rather special comments this week asking me to do so.  Blessings and thanks dear friends.

On another little subject that seems to be most difficult at this time of the year for the newly bereaved is the putting- up of Christmas decorations. Often these have great sentimental memories attached to them and are often collected together over the years if you have been together for a long time. I have talked of this recently with dear friends on-line and through social networks. Folk who are struggling even to get a few pieces out of boxes for the festive season. Me too I’m afraid. Really I feel it depends whether you have grandchildren visiting or not. Last year when very newly bereaved I made a huge effort to do all the ‘normal things’ especially for my Grandson and family. I found it most difficult but he had lost his beloved Grandpa only the month before and I wanted all to be as it was in previous years when he visited. As if it could possibly be but I am sure you understand. I wanted him to think nothing else had changed too much. My feelings if you live alone now, that perhaps changing things a little can help. It’s painful when so much is going on around you, Christmas displays and festive music in all the shops makes it difficult to function without sadness as it is. So instead of having your normal decorations, perhaps having a small arrangement of twinkling branches maybe flowers instead of the tradition tree if that is what you used to share with your special person. Change things a little. Perhaps a decorated photo of your loved one with gorgeous scented candles that can be lit when the mood feels right for you, would be better for your heart.

When Hamada was very ill he would love to look at the Christmas lights even more than before when he was busy, he would watch as I decorated the tree with little suggestions here and there.  The following poem written in 2008 tells about that and is shown below. Have a joyous Christmas my dear friends with all your good memories, as precious as the love you will always have for your special person.

 

In Christmas Lights.

 

Sharp and crisp as snowy nights
crystal clear in prism lights,
gentle orbs that sparkle bright
shining are your eyes tonight.
Reflected jewels of liquid amber
like dripping rich fondant creams,
chocolate in the deepest hue,
I bow my head to look at you
 
Eyes that hold this strangeness well
in candlelight they watch and drink
forgotten words, much time to think.
A bitter pill that’s hard for you,
as fairy lights come into view,
white and gold’s, red and greens,
you simply watch in reverent scene,
reflections in those honest eyes
of baubles and of Christmas time.

 

In Christmas lights my poems for you
expressed in love, a poignant view…

 

All Rights Reserved: 2008

First Year Anniversary of Hamada’s Death.

 

I felt it appropriate on this first anniversary to post again two poems written around this time last year. The first, the simple poem “This Rollercoaster Life” was written when I knew and needed to accept that there was no more that could be done for Hamada or rather that there was no more medical intervention that our dearest Hamada could possibly have managed or that he wanted done. Although we still kept hope alive really apart from the love and tender care I could possibly achieve during his final days, I knew I had to accept that this was the time to stop fighting to keep him with us and pass on my care to the Almighty.  The second poem was written shortly after losing  Hamada and deals with the acute and painful feelings of this time. Letting go with dignity is hard when all you want to do is scream aloud with the painful sadness you feel. I have made it through this first year with much help from my dear family, very close friends and my MM friends worldwide. I thank them from the bottom of my heart for their love and patience but mostly I chose to grieve in private, apart from a few rants on here or when hearing a favourite song or piece of music that we both loved, caught me unaware. I may place a smile on my face everyday but my heart tells a different story.This man was much to miss! 

Manu and Grandpa - Stickers 2007Manu and Grandpa in bed - laughing 2007

“Hamada’s story” is still and will remain on http://www.susiehemingway.blogspot.com  It is in reverse order for the new friends who I know come here from other sites to  read about MM, ending with his final days and covering more than four years. All aspects of emotion in the form of poems and many entries on caring and loving someone deeply as we both came to terms with the disease that is Multiple Myeloma.

Today and always I salute this special man: “I miss you dearest one as the sun comes up everyday and the moon appears at night, and as private as my tears fall, I miss you with every breath I take”

“This Rollercoaster Life” – 24 October 2010.

 

As swooping as the Rollercoaster
my heart hangs in fearful suspended news
that fills these ‘purple days’.
Days that bring shattered dreams,
only the strongest mind can hold.

 

My laughter becomes an echo that teeters on the edge
as I snap and break at disclosures strewn around.
My heart bleeds to dissolve this anger
which knows no bounds and as unruly as my mind.

 

Soaring high into this shimmering mosaic sky,
I hang on like a child that screams into the wind,
as these punishing swoops, turn into views as
fragile and as consuming as this Rollercoaster life.

 

All Rights Reserved:  October 2010.

 

“Let Me Not”  – 2 December 2010.

 

Let me not falter dear Lord.
Let me not fall at this final hurdle.
Guide me now to complete this task.
Let me not plaintively wail and scream as my heart doth now.
Allow me to show dignity that he always showed.
Let me not stand beneath the stars and scream his name aloud.
Let me remember this day, as we honour him.
Grant me the courage that he always showed.
Let me not go down on my bended knees and shout at the sky,
And implore you to return him to me.
Let me not fall at this final hurdle.
Give me the strength Oh Lord not to fail,
with this final task…

 

All Rights Reserved: November 2010

"Poetry is the opening and closing of a door,
leaving those who look through to guess about
what is seen during a moment" Carl Sandburg

God Bless Hamada.

“I recall this time”- Carers Support Article.

Hamada

As this month embraces Autumn I recall the September of last year  and the wretched struggles of that time. I suppose in retrospect this backward view, this sorrowful indulgence, is something that those bereaved need to do. A kind of  summing up as you approach  the first anniversary without your special person. It is not maudlin or mawkishly sentimental, far from it. It is for me necessary for shall we say, the organization of the mind.

In the early months of loss, when so numb the years of caring seemed like a bad dream. I could not breathe without pain through the sorrow and  I would have turned back the pages of the book to have him back with me in an instant. Of course never to see again  the horrors of this disease or  the damage it inflicted on this gentle wise  man or for him to suffer on and on but just to hear his voice calling my name or to see his eyes light up when I entered his room.

I was not the only one amongst our friends to suffer loss that year. MM took many of our newly made friends in 2010.  Friends made at the hospital, diagnosed at the same time and internet friends made out of a need to follow together as Carers. We used our common knowledge, clung together in an effort to help, support and glean information fr0m each other when we could. We became a strong body and positive in our efforts to champion, protect and help.

For the first few months of MM although I clearly knew the facts but because of our strong love, I believed we could beat this disease and although I saw and knew well the terrible changes overcoming Hamada, I continued with hope until the end.It goes without saying that this period of my life, the immense shock at diagnosis, the daily struggles, doing my best to help was and has  been without doubt  the most difficult period of my life but we made it to the end with peace and dignity and you will too my dear friends, the many of you who are still fighting for your love ones. Obtaining the best care you can for them and guiding them daily, to achieve a good quality of life from this a most difficult disease and the saddest period of your life.

Together  with love and tenderness these days become supremely special and will stay eternally in your memory.  It’s really all we ever want is it not, to be loved and well cared for in our final hours.

As Hamada’s first anniversary approaches, I have decided not to write here again about his ‘journey’ unless asked for advice or information regarding caring with Multiple Myeloma. I hope to move on to other subjects  but I will of course follow my friends blogs, checking in on them from time to time to see how they are doing.

I think my dear one should be allowed to rest in peace now. My intentions are to take time to get on with the years left to me. To enjoy each God given day to the best of my ability and to embrace new joys that have presented themselves. It would after all be just what Hamada would have wanted.

*“There comes a time to remind yourself of your reasons for living. You have a future worth enduring and you deserve to find a renewed sense of purpose and pleasure in your life”

*From Grief Therapy by Karen Katafiasz.

A Certain Solace.

sunset at Kanyemba from Ellie

 

Withdraw and surrender
or restore and live?
Painfully utter or sing joyously aloud.
Or impair fatally to ruin
all that comes to you.
The choice is yours.

 

Enhance the beauty of your life like a twilight cirrus streaked sky.
Illuminate your life in daily joys.
For joys there are!

 

Live an anguished life in mask of grief?
Or find solace in this diorama of
changing colour and direction.
Sink or swim?

 

Renounce, abandon,
or repair and mend?
The choice is yours.

 

Enter that empty void of senselessness?
Or find that certain solace.
Swim to the top, swim to the top,
do not succumb to misery.

 

Lift yourself from daily pain.
Fight against this hanging pendent of rage
you wear so well.
Leave behind that ache
as heavy as a dying  bloom.

 

Live your life…
And find that certain solace.

 

 

Poem inspired  by a comment from Lileng.

Photo courtesy of Ellie Robson.

Copyright 2011 Susie Hemingway.

.

A Difficult Task.

Key of Life- for Hamada

What will it say in years to come? What will it tell the folks who pass by and glance, reading the words I’ve chosen. How I wanted to tell a story on this tablet of stone. How I wanted to place so many words. Words that would have filled this oblong of granite. Something much more, about the special man who rests here.

The rules are strict for the Diocese of Lincoln: Monuments should be of natural stone (with no reflecting finish) and a list of recommended stones is given to help with choice. The stone must not be polished, nor finished in any way to give the effect of polished stone. I agree with all this, keeping the beauty of this peaceful resting place is so important and garish shiny headstones would look out of keeping, here amongst the grey.

Inscriptions should be simple, reverent and with an appropriate epitaph but how difficult in a few words, when I wanted to say so much about the wise, kind and caring man who lies here.

I could have added angels to keep you company, or lilies in ornate decorative splendour carved across the stone. I could have added copious words in gilt, flowery sentiments of love. I wanted to say so much. For in my heart I desired the biggest and the most elaborate memorial stone of them all. A pharaohs tomb. For in my world you were the very best of them all.

Instead I knew you would not have liked that. For you were most humble, for you were too elegant for showy symbols. You would have wished to mingle unnoticed amongst the others, although you never went unnoticed.

Just a simple plain stone you said, like most of the others in this quiet lovely place of rest. Just my name you said, I will be proud to rest here you told me.

Keep it simple, keep it simple echoed in my ears but my heart wanted so much more, as I stood before the selection of traditional stones. Let it be elegant for this most elegant of men.

I made my choice, only once biting the inside of my mouth to stem the tears as I realized this would be the last task I would perform for dear Hamada.

So we shall see in early September when we stand together once again to honour this beloved man. I believe I’ve chosen the simple words well. Hamada would be pleased.

It is right and fitting.

A New Beginning.

Susie's Trip to Espana May 2011 019

Taking little steps and turning the pages of a new life is often difficult. A life that will be so different for you without the one you love. As I knew long before Hamada died, that he would not survive MM. We discussed a plan that would help sustain me through this bereaved time. Taking a little holiday as soon as I felt well enough to do so was something Hamada in his wisdom had suggested. I have always wanted to travel more, there are so many places yet to see and certainly not so many years as there once was to do this in! I would make a gentle start with a small trip as part of my healing process. We never dwelled on him dying but often mentioned little things that I remember now that were  all said to help me. Now at his six month anniversary I have achieved my first trip away and how very lovely it was too.

I selected something easy and not far away, Denia in Spain.  A place I had first visited back in 1968. When as a young woman I had stayed as a guest in a beautiful villa “Mar-Jon” close to the base of Mount Montgo, the mountain that sits as a watchful eye over this pretty seaside town.

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Now of course packed to the gills with villas in every available space but still just as charming. I loved it then and always thought I would  return one day. Selecting a good hotel safe for single travellers with all the comforts of home was fun to do. Marvellous food, loads of good fish and delicious vegetables and desserts and with people my age and older, all looking for a genteel time, of course with fun and laughter but aimed at comfort and ease. It was delightful to listen to stirring new conversations and make new friends among the well travelled there. I was surprised to know that some had been returning to this part of Spain for many years, singles and couples all very happy with the clean and efficiently run hotel with its excellent bar and enjoyable evening music. An attractive place to unwind after a good dinner and a  day of walking and swimming.

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Denia in Spain is still a lovely town retaining much of its authentic Spanish charm. The picturesque marina that I remembered as a small place back in the 60’s, is set beneath the pretty old Castle; it had stayed long in my memory. Now a fabulous place full of luxury yachts of opulence, marvellous paved walk-ways and wonderful cafes and tapas bars with upstairs terraces for fabulous views of the bay. I spent most of my days walking in the warm sunshine, admiring the sleek ‘sun seekers’ and the huge ‘gin palaces’ shining and pristine with gleaming chrome, their smooth lines of design resting gently upon the bright blue of the Mediterranean sea and so ready for the ocean.

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I stopped each morning for marvellous Americano coffees to take in the beautiful views, then walked some more in the warmth of the Mediterranean sunshine. My shoulders  relaxed as I drunk in the beautiful vistas and for the first time in many months not – and I know this sounds so selfish – having to worry about pushing a wheelchair or almost carrying my dear Hamada. I could have walked there forever with the gentle sun warming my soul.

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A weekly market in Denia was a bustling delight, reminding me in some ways of the colourful souks of the middle east I purchased from a grand selection, two rather nice sun-suits for further holidays. The sweet Spanish lady insisting I tried them on over my t-shirt!  Still she was right they fitted perfectly and would have still been cheap at twice the price. Bright and gaudy stalls covering a large area sold all manner of things and certainly worth time spent there. The level walk to the town centre along pretty streets with the red white and pink of the bougainvillea covering pretty courtyards in perfect weather was a delight.

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Slowly I could feel the stress and strains of the past five years release from my body. I thought of  Hamada often, as I embraced Denia and of my new life as a single person now. Enjoying this pretty mostly unspoilt town that has retained much of  its Spanish charm with many places to stop for a cooling drink or little tapas. I enjoyed the best deep fried calamari’s (squid) I have ever tasted!

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Sitting under the vine leaves of a centre cafe complete with fountain and pretty shops to view. I thought back on the struggles of  many months past, knowing that I had done my best in everyway for my precious man and that he would have been so happy for me as I embraced a new life. There will be many sad times for me of that I am sure. For indeed he was my soul-mate but I am taking little steps and turning the pages slowly of this ‘new’ life…  I am a strong woman and I have “The Power Within” to survive  -Blessings  dear friends.

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