Susie Hemingway

A Power Within

Category: Uncategorized Page 22 of 25

Update. – A Stem Cell Transplant – 10 October 2007

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On October 10, 2007

In Uncategorized

Hamada started his Stem Cell Transplant after a restful night at Nottingham City Hospital. The high-dose chemotherapy drug melphalan was started yesterday. Now just one days rest and his stem cells will be infused back into his bloodstream. He is rather sick today which is to be expected and has been given drugs to help with this. He has had some prior hydration to help and support those precious kidneys and the renal department is working with the transplant team.

Hamada is a little emotional today and the next few days will be most important for him and until engraftment is complete we must be so careful to avoid any infections and take precautions before entering his room. He really is in the best possible place and we are so pleased he has made it this far in his fight with this difficult disease. I will continue to update – I know that many Multiple Myeloma sufferers are following Hamada’s journey. Best wishes to you all.

Thank You All.

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On October 6, 2007

In Uncategorized

Hamada wishes to thank you all for your support and many messages of good wishes for his forthcoming ‘Stem Cell Transplant’ procedure, starting on Monday. He sends his love to you all and says he is ready to do battle now! I will of course update on here for all our friends worldwide and for his family in Egypt. Good Luck Habibi.

The Spiders Web – by Susie Hemingway

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On October 6, 2007

In Uncategorized

As the spiders web draws you in
your eyes flicker becoming dim
I reach in terror to ease your pain,
but however I work, there is no gain.
the mist around your tired face
draws you gently to that place.
don’t enter the web that pulls you close,
stop spinning spider, leave your prey.

We fight and fight this daily battle
and hate the spider and its chattel
who tries so hard to lure you,
so easy is that gossamer thread
that wants to take you from your bed,
floating in the calm warm air
let me brush your silver hair,
go back spider, let go your grip.

Go take your ‘arachnid’ ways,
and spin somewhere another day
go find a substitute not him
and leave this gentle quiet soul
go spin your large white wheels of lace
that ensnare and strangle in their wake,
go back and think again,
for this is one, you’ll never win.

Stop spinning now, don’t draw him in.
leave him quietly, to sleep at peace.
go find your other prey to squeeze
for I don’t like your weaving ways
and this one has more sunny days.
You nasty creepy malignant beast
leave him be, go make your web
your threads that spin and crept within.

So easy is that gossamer thread…

All Rights Reserved
@ Copyright 2007

Great News At Last!

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On September 18, 2007

In Uncategorized

Such good news today, after a consultation with Prof. Russell – the date has now been set for Hamada’s stem cell transplant. Hamada will enter Nottingham City Hospital under the care of Prof Russell on the 8 October. How we all wish him every success with this.

If I Could Dream You Well Again – by Susie Hemingway

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On September 1, 2007

In Uncategorized

In dreams I make you well again
in the quiet of the night
you run with me, in endless flight,
far away in thoughts of long ago
we run on beaches sailing to
deserted islands, strong were the arms
that pulled the boat ashore.,
In dreams I see you there once more.

In dreams I make you well again
your long limbs brown and strong,
the warm breezes puff at our skin
we swim in blue waters
you touching my nose and cheeks,
the droplets of crystal waters
dry with salty streaks,
In dreams the picture never alters,
In dreams I see you there once more.

In dreams I make you well again
to walk the sands with me
you standing tall, with eyes so clear
from El Salam* unto the sea,
to see the lighthouse in the bay
for you to breathe that salty air
for you to brush my long fair hair
In dreams I see you there once more.

In dreams I make you well again
in the quiet velvet of the night
the smile that changed my life
from dusk until the light,
in dreams you dance with me
on islands in deep blue seas,
close your eyes and dream with me
see those ‘najoods’ that stand like waves
see those golden seas of sand
see the place you held my hand.
*najoods – Sand dunes.
*favourite hotel
@ Copyright 2007

Do You Remember Paris.

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On August 12, 2007

In Uncategorized

Do you remember Paris
so many days ago,
we ran in the rain
me in the highest heels, and
you never letting go,
dodging busy bustling streets,
past the Galerie of Fine Arts
wishing we could buy the shop,
do you remember Paris.
The tiny hotel you’d chosen
with a lift for only one
we squeezed tightly together
leaving our baggage still to come,
we laughed, as we rose to the attic
wiping the rain away,
and in our little shuttered room
we hid ourselves away,
do you remember Paris.
You sent for rolls and coffee
from the cafe just below
and as the lights came on
the room took on a rosy glow,
you say the smell of coffee
takes you back to that little room,
that, high over-stuffed bed,
the faded flowers, in candle gloom,
do you remember Paris.
We mixed the ‘Coco’ and ‘Givenchy’
the hearts so full of love
the heady cognac, just to warm us,
the courtyard full of doves,
it was our Paris, not the Eiffel
or the Champs-Elys’ees
or even the Louvre
just in the latin quarter, a tiny
hotel for two.
Do you remember Paris ? …
@ Copyright 2007

A Little More News

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On August 10, 2007

In Uncategorized

Clinic at Lincoln Hospital this week has shown a slight reduction in the ‘Bence Jones’ protein readings, dropping by .6 it’s not much but it’s certainly going in the right direction again.

Hamada has felt really good this week and has been enjoying the garden and the lovely weather, his white blood cells are now very low, causing neutropenia – cytotoxic chemotherapy has a tendency to induce neutropenia, so we must remain alert for symptoms of infection. Still we are very happy that a reduction has started again. Thanks again to all our friends and their good wishes – we send love.

More Chemotherapy

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On August 3, 2007

In Uncategorized

Hamada is continuing with the Chemotherapy during the whole of August and September in an effort to reduced the ‘readings’ once again and then hopefully proceed to transplant at the end of September. His white bloods cells have reduced so he is more prone to infections and we must be careful to reduce all risk of infections duing this time. However we do try to carry on with a normal lifestyle.

A Good Improvement

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On July 26, 2007

In Uncategorized

Hamada has made a good improvement over the past week – very weak – but so much better.
Now starting his next course of ‘Chemo’. Many thanks to Amr our Nephew, who made the journey,thanks to Jo, to see his Uncle and spent time with him having so much fun catching-up and chatting together in their ‘Arabic’ and playing backgammon together. It was a wonderful tonic for Hamada. Even managing a drive to the beach and a walk! with the boys support.

Home Again

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On July 22, 2007

In Uncategorized

Hamada and Ian

Hamada returned home after an eight day stay in Lincoln Hospital, he is still weak but so much better after the good care and attention received . Thanks to the amazing team in A and E – also to Mr Bowen and particularly to the young house Doctor – he knows- without naming- who went to extraordinary lengths to help sort out the many problems that arose – especially with the medications. Thanks also to the great team of nurses on ‘Dixon’, we could never do without your continuing patience and superb care. How grateful we are.

I Wish I Could Untangle You – July 2007

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On July 12, 2007

In Uncategorized

See twinkling eyes that dull with pain
eyes once bright as fire flames
we juggle pills to make it wane
with every day I cry for you
moving now is hard to do
limbs get stuck refusing to
unbend, and move as graceful should,
I wish I could untangle you
dreams that see you run again
walk the miles that never end
play the games we used to do
dance forever, just us two
this once strong man
who laughs with me
now has morphine in his tea
instead of ‘bubbles’ in a glass
thinking of sweet days gone past,
still we can dance, if very slow
so legs don’t stumble, I’ll
not let you go, put on
the music, hold me tight
and yes, it still feels very right
we’ll play the soft and gentle songs
the ones you love, we’ll float along,
I’ll watch your singing eyes
and wish I could, until I die,
I wish I could untangle you
I wish…. I could untangle you
@ Copyright 2007

Back To Hospital !

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On July 12, 2007

In Uncategorized

After a good consultation with Prof Russell and feeling happy about the plans for further treatment, Hamada was very unwell during Tuesday night, and after rather a panic ,was rushed at 4am by ambulance back to Lincoln where he has been re-admitted. He is stable and has been sedated for most of the day he will be there until further notice, a check by the Haematology Team today will tell more. Thank you to the wonderful paramedics who once again did a sterling job, so fast getting to us and so very efficient

Lincoln Hospital

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On July 10, 2007

In Uncategorized

A better visit today at Lincoln Hospital, a consultation with Prof N Russell of Nottingham City Hospital prove to be more promising. The Professor would like Hamada to continue with the current Chemotherapy regime for two more monthly cycles and hopefully reduce the levels again, to proceed to a stem cell transplant in late September, as he does have enough stem cells collected now. This has really pleased us,as we have a date to work towards. Hamada feels far more positive this evening and that works for me.

Thanks to all the kind staff we met again today- they all work so hard- and lovely smiles are always found for all their patients. Our thanks to you all.

Again thanks for all the recent messages from friends and relations in different parts of the globe, you never fail to amaze me with your great wishes of encouragement, they really do help to keep Hamada cheerful and they do lift his spirits so.

And The Music Played…..

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On July 6, 2007

In Uncategorized

So you found that quiet place
where lights were dim
and I was dressed in lace,
this boulevard of strangers
just the perfect place,
the candles melted slowly
Oh! your handsome face.

You found that quiet place
when you took me in your arms
the slowness of the music
you, and all your charms,
I’d left my heart behind me,
but then the music played.

So slowly we turned, on
this tiny wooden floor
I believed I had been here
just once before,
the closeness of you, in
this boulevard of strangers,
and yes, the music played.

So you found that quiet place
with little tables and wine to drink
nothing more, no broken dreams,
no promises, or time to think,
just you and some magic
and the music played.

So I left my soul behind me
and suddenly, I was free,
and the music played…
@Copyright 2007

The Daily Task !

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On July 4, 2007

In Uncategorized

The daily task and extra to this! are all the Chemotherapy Drugs Hamada is taking everyday in his battle to overcome his illness. Hamada is a little better this week but he has bone pain, which we are getting almost under control. He thanks everyone for their lovely messages of encouragement. he remains cheerful but thoughtful.

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