Fifty poems of Love now available to purchase: Link Here
http://susietest.stff.me/books All prices include P&P
Fifty poems of Love now available to purchase: Link Here
http://susietest.stff.me/books All prices include P&P
Later this month my poems are to be published in a book called “A Power Within†It is pleasing to see more than fifty of these poems of love, all together in this beautiful book with it’s rich coloured cover-not I might add, the beautiful photo I leave here for your delight today-and 105 pages, which would look beautiful adorning any coffee table. I am thrilled with the result of the proof and with the superb layout done by Matt Rutherford of www.mattrutherford.com thank you Matt. More news on the release date will be here later this month.
~Sunset Photo courtesy of Colin Brown – All Rights Reserved~
As friendships and knowledge builds with other Myeloma sufferers, it is easy to understand that this Cancer unfolds so differently for each patient. With a huge variation in symptoms, it appears such a diverse disease that seems to stumble on the weakest organs making it’s own unique way of attack. For some MM sufferers the damage unfolds with lower back trouble or in long limb fractures or breaks. I know that a neck fracture was the first sign for a friend that something terrible was wrong and then much later a diagnosis of MM was made. How differently this disease shows it’s signs in each patient.
For Hamada it was kidney failure that came out of the blue with no signal at all that anything was amiss, just an unusual feeling of tiredness. For sure it is so important to get an early diagnosis before the myeloma does serious damage to vital organs but how many of us get regular blood CBC’s? very few I would imagine in the UK. Unless like Hamada who did contract work at times and needed good health checks for insurance travelling abroad etc. In many cases this disease could and does go unnoticed for many months, so the damage is already done. Although Hamada succumbed to MM he was in one way, very lucky to have had an early diagnosis as we believe that having had a blood test only six months before the very one that picked-up his kidney failure, certainly played a great part in getting him to this now, three years six months point. Early diagnosis I believe, is paramount and vital, we all know that the damage done by Myeloma cannot be reversed but it can be brought under control. Still with good care it is important to stress, many patients are now living long and productive lives.
Hamada was immediately prescribed a vast array of maintenance drugs from day one. Including some to protect as much as possible, his bones and the lining of his stomach and gut etc. It is so important to keep regularly to the times of taking these drugs and injections, not missing out or delaying in the filling of prescription etc. Good continuous management of drug awareness, taking as much care with infections, avoiding places and people with colds or worse still flu.
Diet is vital to the success of a longer life. Good tasty meals that contain a good variety, covering all vitamins and minerals and for some little and often is the rule. In the case of Kidney damage, eliminating salt and potassium and increasing liquid intake to a reasonable two litre per day amount, has helped Hamada greatly. I know that there are many MM sufferers who still enjoy a glass of wine, and why not? But if the kidneys are affected not really a wise move, the rule always being, water is best. Hamada now has 15% kidney function when at diagnosis he had only 6%. A great improvement that has kept him from dialysis.
The very difficult part is that Hamada’s Para Protein-an important marker and indicator in the activity of the cancer- is rising once again, and the decision will have to be made shortly, with regards to the next chemotherapy regime for him, possibly Velcade. Whether he is really strong enough to try again with more chemotherapy and if this is the right drug of choice at a time, when he is enjoying a quiet but steady pace of life, is a most difficult decision to arrive at. The damage from this drug would certainly be detrimental to parts of his poor quality blood, which although not getting much worse, is not improving either but could bring down the para-protein and such, help to eliminate further damage to his bones and organs.
We think the New Year 2010 will bring the answers to these decisions, Hamada has achieved so much and done so well we feel, for someone given a prognosis of only six months at outset . He continues bravely and without complaint about anything, a great lesson to us all I feel. So steadfastly we make the most of each and every day with love and the best possible care we can manage. We sincerely wish all our friends in the world of Myeloma (sadly there are many) peace and hope, a decent quality of life and the very best care possible from your providers but most of all, love and kindness from your carers .
@ Copyright 2009
I have taken my beautiful “Borgo degli Ulivil†sparkling grey dancing shoes, from their satin lined box, my soft grey “YSL“ velvet evening purse from it’s silken drawstring pouch. I have fixed my long tresses, in a more elaborate style. Drenched myself in Coco Chanel and slipped into my twinkling jet encrusted long “Dior†gown. I have brought all my diamonds from the safe for this is indeed, a special occasion!
So here I am, the journey was uneventful, my elderly Rolls purred along the English countryside to our dear little airfield. The flight across the pond was smooth, fast and over in what seemed like a mere moment or two, my pilot for the evening trip is my dear friend Richard Branson.
I am at the “Willow Manor Ball†waiting now for charming Al Pacino to lead me to the dance floor for the first tango, and then whoever is able to dance with style and passion would be most welcome. Perhaps that charming Skip Simpson, I think he is taken with that pretty Cameron something or other. Or could it be my old friend Omar, he is a tad tired these days but still likes to dance and such a one for the scintillating conversation that I love, when of course he can bear to leave the poker table. We have had some wonderful games of backgammon over the years in his charming apartment overlooking the Nile near Cairo
How wonderful that I am attending the Cyber ball at “Willow Manor†Such fun we are all having, with wonderful Beluga Caviar on the daintiest of Blinis with just a glass or two of Vintage, Dom Perignon bubbles.
The orchestra is playing all the old dance numbers from many shows I can recall, my feet are yearning to dance, could that be Mr Astaire over there? I am thrilled my dance card is full to the brim! How simply wonderful the hostess looks and all these terribly handsome men over there, surrounding Marilyn Monroe. What a party this is turning out to be, here at “Willow Manorâ€
The Manor I must say looks amazing, with much crystal reflecting their acting prisms of lights on the most beautiful rich brown mahogany floors. The flunkies are everywhere with trays of the most delicious canapés. The smell of the huge vases of Lilies and Red Roses are overpowering – so reminding me of my poem “Lilies†– and that truly wonderful place years ago… but I digress, no more of that.
I am here to enjoy this evening to the full and I have noticed some admiring glances from several of the more mature men! I think I recognizes dear Paul Newman and is that not the charming young cove Johnny Depp? and can I see our dear old Richard Burton chatting away to Dame Helen Mirren, yes I’m right, just behind that marble pillar next to Eric Clapton and his friend, the handsome dark haired man from Santana. I believe they are playing later tonight. I shall look forward to that.
What a splendid array of guests, pulling dreams and memories from my mind, how charming they all are. We might have a salsa or two later, there are some very swarthy slim young men here. I heard a very beautiful redhead mention that the wicked Lord Byron is also at Willow Manor tonight! I will work my way around the room later and enquire after his health.
I can see John Lennon in deep conversation with dear Luther, ahh now will he be singing I wonder? then my evening will be complete. Umm, those lush deep tones of blues and soul, I can hear a sax playing in the ball room “ Heaven I’m in heaven†da da da la la la la… de da da dee…†when I’m out together dancing cheek to cheek.â€
We shall be going into dinner soon, I am almost overwhelmed, as our superb hostess has informed me, I am to be sitting between dear Tony Bennett and Robert Redford and opposite the young and very handsome Elvis Presley, whom I understand is to be singing later. Oh what fun we are all having !!!.
The evening is young, alas I am not, but still…it is a delight, full of dreams for everyone who attended the enchanting “Manor Ball†A flight of the imagination perhaps…..?
http://www.willowmanor.blogspot.com
Update from Willow Manor 14.10.2009
On the 8th of October it will be two years since Hamada’s Stem Cell Transplant and we once again thank Prof. N. Russell and his wonderful team at Nottingham’s "Centre of Clinical Haematology" for their expertise and for securing these past two years for Hamada. We continue with joy at each given day and try to make everyday as special as we possibly can.
In celebration I post here Hamada’s favourite Poem, apart from mine! ( I’m jesting of course)
~
All Rights Reserved@ October 2009
@Copyright Susie Hemingway 2009
K
@ Copyright 2009 Susie Hemingway.
Photo Susie and Hamada –Alex 1986. Wallflower Photo courtesy of Janey Johnson Photos. 2009
*This Poem was Posted On The Day Patrick Swazey Died Of Pancreatic Cancer. He Was A Wonderful Dancer bringing much pleasure to many ladies who saw him in the enchanting film “Dirty Dancing†So I dedicate this poem to Patrick and to all lovers of dancing . “May Patrick continue to dance in Heavenâ€

It was a comforting day you said
skies of blue, white vapoury
scudding clouds lifting the
shimmering colourful kites
to the heavens in breezy skitsy way,
I followed your eyes
I tried to see your soul,
in quiet reverie as no one knows
the heart that pushes down this pain
in a day affirmative that popped
like champagne.
Laughter surrounds you
consuming and capturing this
mere moment but for you a life
so difficult and as fragile
as the bubbles in my glass,
breathe my love, live in mind forever
this sun warmed golden day
of perpetual joy,
paint these brushstrokes
on your heart, for life is now,
this time is ours
as precious and as beautiful
as the stunning mosaic sky.
My cares fluttered like the
swooping of the Kites
free and belonging to the skies,
intrinsic as the white opal swirls of the clouds
tossing my sadness into the wind
so carrying us forward with courage
to yet another day
refreshed and replenished
you glanced at me,
in soft light fading…it was a comforting day.
Copyright@ 2009.
Photo courtesy of Matt Rutherford.
This poem is dedicated to Dianne and Vern West, Nevada, Arkansas USA
for their courage.
Found this quote on a great blog – I like it a lot.
Ink runs from the corners of my mouth.
There is no happiness like mine.
I have been eating poetry.â€
Mark Strand.

Â
Calm are the seas we travel now,
the sail is down
how tranquil is the ocean,
we drift past the deserted islands
with their scattered palms and
fallen coconuts,
we lay on the deck, with bronzed
skin and salty mouths
calm are our seas,
the soft magnolia smell of warm breezes
whispers through our hair
all is blue, placid and serene,
I am here with you, for once
essential as the mainstay
Calm are our Seas…
Photo: Personal Oil Painting – somewhere special in Oman.
* N.B. See Comments for Dedication.
@ Copyright Susie Hemingway 2009
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