Author: Susie Page 27 of 30

After a good consultation with Prof Russell and feeling happy about the plans for further treatment, Hamada was very unwell during Tuesday night, and after rather a panic ,was rushed at 4am by ambulance back to Lincoln where he has been re-admitted. He is stable and has been sedated for most of the day he will be there until further notice, a check by the Haematology Team today will tell more. Thank you to the wonderful paramedics who once again did a sterling job, so fast getting to us and so very efficient

A better visit today at Lincoln Hospital, a consultation with Prof N Russell of Nottingham City Hospital prove to be more promising. The Professor would like Hamada to continue with the current Chemotherapy regime for two more monthly cycles and hopefully reduce the levels again, to proceed to a stem cell transplant in late September, as he does have enough stem cells collected now. This has really pleased us,as we have a date to work towards. Hamada feels far more positive this evening and that works for me.

Thanks to all the kind staff we met again today- they all work so hard- and lovely smiles are always found for all their patients. Our thanks to you all.

Again thanks for all the recent messages from friends and relations in different parts of the globe, you never fail to amaze me with your great wishes of encouragement, they really do help to keep Hamada cheerful and they do lift his spirits so.

I drive across the fields of gold
the tears upon my cheeks not old
to leave him in this place so strange,
such is the pain of love,

this quiet gentle smiling man
whose eyes can hardly understand,
I breathe his courage, I live his fear,
such is the pain of love

he looks at me with eyes of love
to find a power from above,
I cannot fail, I cannot falter,
such is the pain of love,

why oh why, this wretched time
should pick this dear and sweetest man
when worlds have met as ours have done
for all of this to be undone
such is the pain of love,

but still we’ll fight and fight
to push the boundaries back,
we’ll lean together to gain more strength,
to learn and listen, and to wait,

this is the pain of love…

@ Copyright 2007

Today, at 10.45 p.s.t. at Thubten Dhargye Ling approximately 100 friends will say prayers for Hamada.

We thank you all.

It was not a good day yesterday with a further visit to Lincoln Hospital, and after a terribly long wait, it was decided after consultation that the best course of action at this time, was for Hamada to return to Chemotherapy. To try to reduce the Myeloma cells and get them to a lower level to proceed to Transplant – the cocktail now includes , Cyclophosphamine,Dexamethasone, and Thalidomide and all the extras that go with that !
He also has some fractures of the vertebrae again and this causes some collapse of the spine which is so very painful . We have good drugs that cover the pain well, but he walks slowly and has lost more height. All these thing make me so sad- to see this lovely gentle kind man, suffer in this way. It is without doubt a despicable disease.

The following poem is dedicated to our very dear friends – Zena and Pieter – who live so many miles from us now – but we shared a life in the following place, mentioned in this poem. They are so constant with their calls and encouragement, that we feel they are never far away. We thank them for their strong friendship and dearly hope to have such fun, as we did in those days, when we meet once again. Thank you both and bless you for your kindness.

Thank goodness, after a most difficult week, Hamada is feeling so much better today. His back pain nearly gone. We visited the Alex Day Ward at Lincoln Hospital for the regular weekly ‘line-flushing’ the wonderful nurses do a sterling job everyday, looking after and attending to many patients. They work with so much grace and understanding for each and every person. Always a smile and a greeting. Nurses, like Linda, Michael and Claire et al. – “Big thanks” to them, and “Heaps of Rainbows” to you all.

See also comment under this. Thank you all.

So many rooms before us
all tall and elegant in their way,
he, brought me to this fine home
to spend our summer days,

And as we greeted one another
I looked from balcony views,
my husband tightly held one hand
his mother did so too.

I loved the fine Aubosson rugs
on each and every floor,
I loved the smell of cedar mixed
with mint, and life before,

and how I loved this golden life
the slowness of the days
this gentle kind enduring Mother
who showed another way.

The calmness of her movements
the joy at everyday,
would take me on a journey
to discover peaceful ways.

@ Copyright 2007.

Found on a friends Web – Jewel (USA). I like this very much.

No matter what is going on
never give up

Develop the heart
too much energy in your country
is spent developing the mind
instead of the heart

Be compassionate
not just to your friends
but to everyone
be compassionate

Work for peace
in your heart and in the world
work for peace

Never give up
no matter what is going on
around you
never give up.

By H H XIV The Dalai Lama.